Just a quick note and update. We've had our follow up EEG and it is still showing some seizure activity, but it looks "a hundred times better". We've not been able to actually see any of the seizures since the ACTH. While things still aren't perfect (whatever that is), I'm thrilled that I've got my little man back. He seems to have awoken from a daze and is interacting with all of us. We're having so much fun!
Back to the neurologist in 2 months for a follow up.
I'll post some more pictures in the near future, I promise. I've been a horribly lazy blogger lately.